Last Chance

Last Chance to Enroll! Enrollment Ends 12/31/18

Who can participate?

  • Individuals with LQTS or a gene for LQTS
  • 8 to 60 years old
  • Relaxed or active lifestyle
  • With or without an ICD (defibrillator)
  • Ok to participate in other studies at the same time

What the study involves:

  • Interviews and questionnaires by phone and/or over the internet – No geographic limitations to participate
  • Wearing a Fitbit pedometer a few weeks per year – yours to keep

Sports and LQTS

The safety of vigorous exercise for those with LQTS is unknown, and current consensus statements recommend that most patients with LQTS refrain from participation in competitive sports more vigorous than golf or bowling.1, 2 Despite these guidelines, a recent study has suggested that some patients with LQTS do participate in more vigorous sports.3

This study does not endorse competitive sports for LQTS patients. Rather, we want to obtain information on the risks and benefits of exercise at all levels, by following individuals over time at whatever level of exercise they are currently engaged in.

1) Maron, Zipes, et al, 36th Bethesda Conference: Eligibility recommendations for competitive athletes with cardiovascular abnormalities. J Am Coll Cardiol, 2005
2) Priori, et al, HRS/EHRA/APHRS Expert consensus statement on the diagnosis and management of patients with inherited primary arrhythmia syndromes. Heart Rhythm, 2013
3) Johnson and Ackerman, JAMA, 2012