The goal of the Lifestyle and Exercise in the LQT Syndrome Study (LIVE-LQTS) is to determine how lifestyle and exercise impact the well-being of individuals with LQTS. Whether you like to walk, run, play baseball, or sit and read a book, you can participate in this study. By participating, you will help us learn more about lifestyle factors and LQTS, which will help all LQTS patients make informed decisions about what they want to do. This study is funded by the National Institutes of Health.
The safety of vigorous exercise for those with LQTS is unknown, and current consensus statements recommend that most patients with LQTS refrain from participation in competitive sports more vigorous than golf or bowling.1, 2 Despite these guidelines, a recent study has suggested that some patients with LQTS do participate in more vigorous sports.3
This study does not endorse competitive sports for LQTS patients. Rather, we want to obtain information on the risks and benefits of exercise at all levels, by following individuals over time at whatever level of exercise they are currently engaged in.
1) Maron, Zipes, et al, 36th Bethesda Conference: Eligibility recommendations for competitive athletes with cardiovascular abnormalities. J Am Coll Cardiol, 2005
2) Priori, et al, HRS/EHRA/APHRS Expert consensus statement on the diagnosis and management of patients with inherited primary arrhythmia syndromes. Heart Rhythm, 2013
3) Johnson and Ackerman, JAMA, 2012